Rare Science

Sewists are needed to create one-of-kind adorable bears to be given to a special child!
If you like sewing stuffed animals, please read to see how you can help.

Rare Bear by Leenie Risser

Recently I learned of a wonderful organization, Rare Science. Rare Science works directly with patient families and foundations to find more immediate therapeutic solutions for children with rare diseases. They have a three step process: (1) Unite the patient community through building registries rich in patient reported information, clinical and research data, (2) Unite research and clinical communities specializing in the disease area, (3) United all stakeholders through activities that foster collaboration building efficiencies to accelerate clinical trials.

Many of us attend the Sewing & Stitchery Expo each year in Puyallup and I was pleasantly surprised to learn that this year, the Expo will be working with Rare Science’s Rare Bear Program! The Rare Bear Program provides children who have rare diseases with one-of-a-kind teddy bears at no cost to them or their families. They need sewists to support this effort. 

Sign up at Rare Science. Purchase Simplicity pattern C5461. Sew the 18″ bear – View E. (Available online only, Simplicity donates a portion of the purchase price to Rare Science.)

Look for instructions to be emailed to you, and a tag and logo-imprinted foot-pad fabric for one bear to be sent to you by mailed.

Complete your bear using 100% quilting cotton, with or without stuffing, and with or without embroidered faces. Mail your bear to the Rare Science Encinitas, CA, location (provided with the instructions).

Once you hear back from Rare Science, you are welcome to order more tags/foot-fabric. Each tag carries a unique number so one day you may receive a photo of a child holding your bear.

Become a member of the Rare Bear Army. I did.

Leenie Risser